AVM Awareness Week - WI 2015

AVM Week Declaration in Wisconsin August 3 through August 10 2015

Following petitions by the Gustafson family, this week, August 3-10, 2015 has been declared AVM awareness week by the Wisconsin legislature. 

Kelleigh Gustafson has a symptomatic AVM and is treated at CHW by Dr. Patricia Burrows.  She and her family have created a nonprofit foundation called “Kelleigh’s Cause” to raise awareness of this often incurable and devastating condition, and to raise funding for research at CHW/MCW.  The funding has already supported specimen collection and banking from patients with vascular anomalies undergoing IR procedures, as well as preliminary Proteomics research on the blood samples from patients with AVM.  The foundation, which has a link to CHW, has raised over $100,000 toward this research.  

Drs. Patricia Burrows and David Moe collaborate with Dr. Ramani Ramchandran at the Medical College of Wisconsin for the basic science aspect of this research.  The goal is to identify protein markers in the blood or urine of patients with vascular malformations that can be used to predict behavior of the AVM, monitor the results of treatment and, hopefully, develop effective pharmacological treatment.

Mon, 08/03/2015 (All day) to Mon, 08/10/2015 (All day)
United States
Event Images: 
AVM Week Declaration in Wisconsin August 3 through August 10 2015